I am a sociologist and bioethicist who studies how emerging biomedical technologies reshape bodies, identities, and systems of care. My work sits at the intersection of medical sociology, science and technology studies, and bioethics, and asks what happens when biomedical innovation remakes people in profound ways, but social and institutional systems are unprepared to support the lives that follow.

My research centers on gene therapy for sickle cell disease and related forms of biomedical transformation. Using mixed methods, I examine how ideas of cure, risk, and justice are negotiated by patients, families, clinicians, and policymakers, and how ethical frameworks and care infrastructures lag behind rapidly evolving forms of medicine. This perspective also informs my broader work on enhancement- and aesthetics-oriented interventions beyond disease, where bodies are increasingly treated as sites of ongoing modification shaped by markets, trends, and technological change.

I serve as Chair of the Lived Experience Working Group within the NYU Pediatric Gene Therapy and Medical Ethics network and previously served on a National Academies of Sciences, Engineering, and Medicine committee on sickle cell disease disability evaluation. My work has been published in Social Science & Medicine, Public Understanding of Science, Bioethics, and Genetics in Medicine Open. I hold a Ph.D. in Sociology from Rutgers University and a Master of Bioethics from the University of Pennsylvania, and completed a Predoctoral Fellowship in Bioethics and Health Disparities at the NIH Clinical Center and the National Human Genome Research Institute.