My research centers on health equity and examines the gap between the promise of emerging biotechnologies and the lived realities of those they aim to serve.
Research Areas and Approach
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What happens when biomedical technologies promise not simply to treat disease, but to transform bodies and lives? How do ideas about cure, normalcy, risk, and possibility shape the development and experience of emerging technologies? Ethnographic and interview-based research spanning laboratories, clinics, and patient communities.
I study the development and experience of emerging biotechnologies, with particular attention to how scientists, clinicians, patients, and institutions construct ideas about cure, risk, normalcy, and the futures that new technologies make possible. Drawing on medical sociology, science and technology studies, and bioethics, I examine biomedical innovation across the laboratory, clinic, and everyday life.
My forthcoming book, Sickle Cells to Super Cells, follows the development of gene therapy for sickle cell disease from laboratory research and clinical trials into the lives of patients and families. The book examines how the promise of cure is constructed, negotiated, and experienced, showing how biological transformation does not necessarily resolve the social and institutional conditions that shape life with disease.
I am particularly interested in emerging technologies that blur distinctions between treatment, cure, enhancement, and transformation—and in what these technologies reveal about how medicine imagines better bodies and better futures. -
Why do promising biomedical innovations succeed scientifically yet struggle to become accessible, trusted, and sustainable forms of care? What social and institutional conditions determine whether innovation translates into meaningful improvements in people’s lives? Research on gene therapy, healthcare systems, access, and the social infrastructure of medicine.
Biomedical innovation does not move seamlessly from laboratory discovery to clinical benefit. I study what happens in the space between technological possibility and lived therapeutic success: how healthcare infrastructure, institutional practices, relationships, histories of mistrust, economic arrangements, and patients’ everyday circumstances shape the translation of innovation into care. This work brings together medical sociology, science and technology studies, bioethics, and implementation-oriented research to ask what societies must build around new technologies for them to fulfill their therapeutic promise.
My research on gene therapy for sickle cell disease shows how barriers can persist even after a technology demonstrates clinical efficacy and receives regulatory approval. Related work examines access to gene therapy, institutional preparedness, trust and mistrust, and the forms of care required before, during, and after transformative therapies.
Ongoing projects examine how health systems respond to the arrival of potentially curative technologies and what happens to patients after treatment. This work asks not only whether an innovation can reach the clinic, but what kinds of institutions, relationships, and therapeutic ecosystems are necessary to translate biomedical possibility into durable and equitable care.
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Why are people increasingly seeking health information, technologies, and interventions beyond conventional healthcare? How do they move between medical institutions and consumer health markets in search of prevention, certainty, recognition, and transformation? Ethnographic research on emerging forms of consumer medicine and the changing boundaries of healthcare.
Medicine increasingly extends beyond the clinic, and emerging technologies and approaches allow people to pursue information and intervention without first becoming patients in conventional healthcare systems. I study these emerging spaces of consumer medicine and what their growth reveals about changing expectations of health, expertise, prevention, and medical responsibility.
My next book project, Consumer Borderlands, uses ethnography and interviews to examine how people navigate the boundaries between conventional medicine and consumer health markets. Rather than treating these domains as separate systems, I follow people as they move between them: seeking reassurance, explanation, early detection, optimization, or forms of recognition they may not find elsewhere. I am particularly interested in what happens when information produced outside conventional healthcare returns to the clinic and patients ask physicians and health systems to interpret, validate, or act upon it.
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Across these areas, my research combines ethnography, qualitative interviews, community-engaged methods, quantitative methods, and interdisciplinary collaboration. I work with patients, families, clinicians, scientists, community organizations, and policymakers to study biomedical innovation as it moves across laboratories, healthcare institutions, communities, and everyday life. This approach treats the social and ethical dimensions of innovation not as questions that arise after technologies are developed, but as integral to understanding how biomedical futures are imagined, built, and experienced.